4.11.2009

Something different

A few weeks ago I started reading Confessions of a CF Husband. It is just amazing what a family endures when they have member with Cystic Fibrosis. This family is a true inspiration.

As many of you may not know, my parents lost their 2 biological children at a young age to CF. They've lived the horrors and the loss.
AS I was reading their blog, I came a across this. This is Eva, and she also has CF. She put together a documentary about having CF and getting a double lung transplant.


Here is a lead to the film:

Spread the word and raise awareness - a true tribute to the power of film and the Internet!

Redefining the traditional scope of documentary film in an electronic age, 65_RedRoses leaves viewers with a new appreciation of life and the digital world. This personal and touching journey takes an unflinching look into the lives of Eva Markvoort and her two online friends who are all battling Cystic Fibrosis (CF) - a fatal genetic disease affecting the lungs and digestive system.

Unable to meet in person because of the spread of infections and super bugs, the girls have become each other's lifelines through the Internet, providing unconditional love, support and understanding long after visiting hours are over. Now at a critical turning point in their lives, the film travels the distance the friends cannot go themselves, capturing the compelling and often heartbreaking realities they face, just trying to take each breath.

VIEW THE TRAILER HERE:

http://www.youtube.com/watch?v=fMGUXOtFxjc&feature=player_embedded


Please keep these people in your prayers as they are struggling too.

3 comments:

Anonymous said...

WOW....I can't believe I never knew that your parents lost 2 kids??? I remember Jenny Greenings little brother getting a lung transplant when we were in high school from their other sister!!! What a horrible disease!!

Good news from your new NSG!!! Hopefully some answers this time!

Hugs,
Joy

BoufMom9 said...

WOW! I had no idea your parents lost 2 children to CF. So, that makes you a carrier?
It's such a difficult disease. I have known and lost 2 friends to it and it is such a difficult road to travel.
Thanks for the info on this amazing film.

Angela said...

"AS I was reading their blog" ... does that mean your parents have a blog too??? Which one??