Just found out that Carson's ICP probe surgery will be done on June 17th.
I believe they will monitor her for 48 hours.
I also believe that after the results of this, they will schedule her for the cranial vault revision (skull reconstruction revision). Her skull is no longer growing fast enough for her brain and so this revision is needed.
I will keep you all posted.
January 2010
14 years ago
5 comments:
I'm glad to hear you've got a date set up & things are moving forward for Miss Carson.
Let me know if you need anything - a night out?!
Thank God things are finally moving in the right direction!
You are all always in my prayers.
Thinking about you guys!
Looking forward to seeing you this summer either at your Grandma's (if you still come) or when I come home for a visit in August!
I hope everything goes well. I'm always thinking of you.
BTW, ran into the MOD rep at the NICU alumni meeting tonight. She said that people can apply for grants for public services,etc... You should ask her about starting up a Chiari chapter here.
She said no one applied in Outagamie county last year so no one got any money.
Hi, my son, Nicholas, has Chirari Malformation 1. His is 7mm long. We saw 3 nurosurgeons and one more next week. Nobody will help us. He has all the symptoms associated with Chiari. How long were you children's chiari's?? He was supposed to have a CSF flow study done...it was ordered by one of the surgeons, but the MRI center in Green Bay never did it,they mest up and did not do it. I think if he had it done, maybe they could help him...or better diagnose his problems. Any advise? We have an appointment next week with Dr. Yazbak in Appleton..he is a neurosurgeon.That is my (our ) 4the doctor we have seen. Please email me back at pcsank@yahoo.com. I would really appreciate any advise you have. Thanks!! Chris Kamke
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