To be honest, it was almost as bad as waiting for "team B" to come out of their skull reconstruction surgeries.
WHEW.
It was a very LONG day!
A bit of VERY GOOD news though, my scan results came back. Main concern, NO CHIARI!!
HALLELUJAH!!!
Nothing like trying to knock out the engine of the 'kiddie train"! I wasn't sure what I was going to do if it came back any other way. I will start physical therapy on my neck now, and get focused on finding Riley the best possibly care out there.
Also, I got a call from the most awesome cranial facial doc out there yesterday morning . Cooper has a quarter size hole on the top of his skull that we noticed is pulsating. He told me it's nothing to worry about, and that nothing/nobody can hurt it, which was my main concern. So, for now, I will cross off Cooper from my worry list!
WHEW.
Today, I am getting to do one of my most favorite things about Christmas. The Fox Valley Mother's of Multiples club decorated ceramic baby feet ornaments to take to the NICU for all the babies who will be there over the holidays. I also made little taggie blankets, and little gift bags filled with huggies wipes, huggies wash cloths, and lotion.
This morning, my good friend Amanda, (who I have to mention, is a relative to the famous UW basketball player - Brian Butch) and I, will take the little goodie bags to the families.
Both Amanda, and I, know what it is like to have children in the NICU over the holidays. We delivered a week apart from each other, I, my 2ND set of twins, and she delivered triplets (2 boys, 1 girl). It's tough. It's the worse feeling in the world to know you have to leave a child behind. Her daughter also has craniosynostosis.
So, together, we've done a lot, and to to do this for the NICU means more to us than anyone will ever know.
Merry Christmas tiny miracles!
5 comments:
That's great news - no Chiari! Good Christmas news! See, you were due for a break.
Hope you have a wonderful time at the NICU!
So Cindy, If Riley doesn't have the Chiari now what? Where do you go from here?
MY MRI came back with no Chiari. As for Riley, we know she has it already.... 5mm. The rest we will ind out on the 26th at our appointment.
Oh sorry My mistake. As for the woman and my daycare.... Her daycare is paid for by the state so they can pay me whatever they want :(
Merry Christmas!!!
Whenever Thomas has a MRI they put him out like that too. And of course he fights it. No fun. They have to make sure he doesn't move at all.
I'm glad to hear things are on the up side.
Enjoy delivering thoses feet. :)
Carol
Post a Comment