Oh Crap? Holy S**T? You have got to effing kidding me?

Hi everyone.

Sorry it's been so long since my last post. Things have been a whirl wind around here.

Carson has been recovering nicely from her cranial vault repair. Today we had her 2 week check up and got a GREAT report - even though she is still rocking.

SHEWWWW that was a big test for me. I wasn't real sure how things were going, and after our tough experience with her ICP surgery, I was a bit on edge. But she shocked us all and conquered it like a pro.

As many of you know from my blogging, Carson had a pretty bad urinary track infection (UTI) while we were on vacation in NJ. It lasted about 3 weeks. Before surgery, she had been on antibiotics and things cleared up just in time for surgery.

We had heard from our ped that it is routine to do an ultra sound of the bladder and kidneys and a voiding cystourethrogram to make sure all things are normal.

*Voiding cystourethrogram (VCUG):
A test that examines the urethra and bladder while the bladder fills and empties. A liquid that can be seen on x rays is placed in the bladder through a catheter. Pictures are taken when the bladder is filled and when the child urinates. This test can reveal abnormalities of the inside of the urethra and bladder. The test can also determine whether the flow of urine is normal when the bladder empties.

So, today we got the results. Carson has Vesicoureteral Reflux in the left ureter. She will be on an antibiotic for 1 yr. and at that time they will repeat both test to see if the VUR has gone away.

But that wasn't all. OH NO. It wouldn't be that simple. Annika had MORE great news to go with that - it's GENETIC. Imagine that.... our family with ANOTHER genetic issue!! So, the other 3 kids will need to be tested as well. LUCKILY - Since Riley and Keegan are over the age of 5, they will only need the ultra sound. Cooper pal, not so lucky. He will have both tests done. I will post when those will be.

SERIOUSLY!?!?!? Can't just one of my kids get something and not have to involve the other 3?

I think I am going to rename my blog to " If it's not Genetic, we don't want it".

By the way..... Where did all my readers go? 2 post, no comments. oh well.


fawndear said...

We found out our six year old girl has the same thing. She's been on actibiotics for at least six months and they are now telling me that she will probably be on them until she is eight. Hopefully by then her body will correct itself or they will do surgery.
I think the scary thing is wondering what the antibiotics are going to be doing to her immune system in the meantime.
I've got five other kids who I also wonder about genetically.
So, I totally know what your going through and it stinks.
Why can't kids get ailments that can heal in a week or two not year or two or never.
Sorry such a long comment - you just took me back in time.
Hang in there.

Barbara Manatee said...

Sorry to hear the latest news. Sheesh! Just when you think things are looking up, huh? Hang in there. Hopefully all will check out ok with the other 3.

Sorry I hadn't commented lately either...back to work and been super busy. I have been getting your caring bridges updates and keeping up with all that's been happening. SO glad Carson's surgery went well and is healing well. What a trooper she is!

Michelle said...


I love the idea for your new blog title - ha! Totally.

So... what happens after being on antibiotics for a year?!

Maia said...

Glad to hear Carson's recovery is going so well. I hear you about not catching a break when it comes to genetics - sheesh!

Chrystal said...

Lurker here. And, yeah, I'm a stranger too, but I can feel your frustration.

I saw Michelle's post about Capps for Carson and I've found the cutest knit pumpkin that I'd like to send if you don't mind.

Please let me know.

Kath said...

I'm here! Been busy, though I have been checking in, and at the caringbridge too.

Sending best wishes for you and the children!

BoufMom9 said...

OH geez Cindy! Just awful!
I am sorry I haven't been around! It's been "hectic", to say the least.
I did get your email and would certainly help any way I can :)

grl-nxt-dr said...

you are amazing. how you handle it all and stay so strong for everyone. so glad to hear Carson is doing well in her recovery. and she looks so beautiful. I would like to send some hats please let me know how. I am new to this blogging thing.