Oh gosh, I have been away for so long I can't even remember how to blog. As I was sitting here trying to figure out how to title this post, nothing was coming to mind. I have been away for so long, that I had even forgotten my login and password combo. How crazy is that?
Most of you that follow me here also follow on Facebook so you aren't totally out of the loop with my life. For you that don't follow on FB, so much has gone on that I can't even imagine trying to figure out how to catch you up, so I will have to make a very long story short.
As you know I have kiddos with medical conditions. Since December, Keegan and Carson have been my struggles. Keegan with his Chiari Malformation and Carson with her Chiari and neurogenic bladder.
The MACE procedure is similar to the cecostomy in that a small portal is made at the beginning of the large intestine. Instead of using a catheter as the passageway for the enema to flow through, the MACE procedure uses the appendix. The appendix is brought to the surface of the skin where a small opening, or stoma, is made)
This is a huge reconstruction procedure that will be permanent. its about a 9 hour surgery and takes 6 - 8 weeks to recover. So. We will see what happens. I have talked to a few parents who's children have Spina bifida who have had this procedure and everyone loves it. I am hoping that we love it as well.
So, that has been my life the last few months, besides all the other daily stuff that goes on with a family of 6.
Sorry for being away so long, but I just didn't have the spare time to write.
4 years ago