I have a 6 year old daughter with Chiari and she has had decompression surgery twice. The last one was 2 months ago. We are going to see Dr. Carson in Aug. for another opinion. I would love to chat with you about your kids and mine. There are so few parents out there like ourselves. I think that sharing our information can lead to better outcomes for our children and others. Your children are beautiful! I have never commented on a blog before, so I hope this message gets to you and you can reply to me.
Life with 2 sets of boy/girl twins, prematurity, craniosynostosis, chiari malformation, neurogenic bladder, and much, much more.
EMAIL: ladybug_wi@yahoo.com
1 comment:
I have a 6 year old daughter with Chiari and she has had decompression surgery twice. The last one was 2 months ago. We are going to see Dr. Carson in Aug. for another opinion. I would love to chat with you about your kids and mine. There are so few parents out there like ourselves. I think that sharing our information can lead to better outcomes for our children and others. Your children are beautiful! I have never commented on a blog before, so I hope this message gets to you and you can reply to me.
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