Sorry it's been a long stretch with out updating. We've been busy!
Our latest trip was to Dr. Frim's Discover Camp where we met a lot of really great families. All patiens of Dr Frims. I would have to say 98% of them are Chiari patients.
Riley and Keegan had a great time playing with the Hartman clan. Gabe and Lindsey are 6 yr old twins, and then there is Hannah who is 4, and Fayeth who is 3.
Riley and Gabe met for the first time at the RMDH right after her Chiari surgery. It was fun to see them catch up again!
Thanks Janet, Rachel and everyone who help make this camp happen!!!
Ok, Now that I have the FUN news out of the way, on to a more serious topic.
Starting next week, I will be living in Chicago for just about 1 week. Carson has an appointment with Dr. Reid, a craniofacial plastic surgeon, and then with Dr. Frim on Thursday.
I talked with Dr. Reids nurse today and she said Carson has been put on the "urgent" care list. She also thought that Dr. Reid and Dr. Frim talked about doing surgery (a second cranial vault repair - like she had when she was 9 months old) already at the begining of August. So, it sounds like it will be a bumpy ride again for awhile.
I will know more specifics after next Tuesday.
5 comments:
Wow, good luck with everything! Camp looks like it was so much fun, I'm so sorry I missed it. Maybe next year!
Hey, you're it! (I tagged you)
http://snipssnailsandpigtails.blogspot.com/2008/07/tag-youre-it.html
The camp sounds like a very interesting place! Glad to hear the kids had fun.
Let me know if you need anything before heading down to Chicago. I'm so glad they're going to take good care of Carson!
Camp - wow! Sounds like great fun! Its always fun to meet other families with the same journey, but also those who use the same dr. We reuniting with several families next week and I can't wait! :)
Good luck with everything in Chicago! Glad the kids all had fun at camp. ;-)
PS...I put something in the mail for you today :-) Let me know when you get it!
Thanks so much for your post. You have done an incredible job chronicling your family's incredible journey. I will keep you all in my prayers.
www.wittybigbrain.blogspot.com
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