Today we had Riley's chiari appointment in Chicago. It was a loooong appointment. 4 hours long....... but the doctor was well worth the wait(he had a great rubber ducky bow tie on!). It was finally nice to hear someone talk about chiari and actually know what they're talking about. I do believe this doctor eat, sleeps, and breaths chiari malformation. So, needless to say, I totally trust him. I trust him so much that I will allow him to do surgery on my child. That's right, Riley is going to be having her decompression surgery on Feb 13th. Riley was an instant candidate due to her aspirating.
The surgery will consist of removing pieces of bone at the base of the skull to make it wider, they will remove pieces of the c1 and c2 vertebrae, and they will open the dura and cauterize the cerebellum tonsils. All of this should be done in 3 1/2 - 4 hours.
So, we will come back to the RMD house on Feb 12, spend 10 days here, and then hope this will be the only surgery she will need.
Lets keep our fingers crossed.
It's been a busy day. My head hurts. I am off to bed.
Good night
January 2010
14 years ago
5 comments:
OH MY Gosh. I can only imagine how fried your brain must be - after a 4 hour appt like that. I am SO GLAD that you like him - and that he's got a plan for Riley.
I'm totally up for an outing if you are ...
I'm soooo glad to hear how much you like Dr. Frim. It will be refreshing. Our appointments are Feb. 20th and 21st. New scans on the 20th, Dr. Frim on the 21st. So as long as we get into the RMDH we'll be there at the same time! Perhaps we'll meet. I hope and pray your childs surgery goes well!!!
Good thoughts coming your way. I still want those bracelets but have to wait untill the 30th!
Not that you want your daughter to have brain surgery, but...it must be nice to have someone take your concerns seriously.
So, where are you girls going out? Martini lounge? Bar? Want another tag-along?
It's good to hear you have such confidence in the dr. That is always a good thing isn't it?
I'm picturing the rubber ducky tie right now :)
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