9.30.2008

30 hours and counting

30 hours and NO sign of 2 pennies!!!

18 hours until I PANIC!

9.29.2008

$700 Billion has nothing on us. I'm worried about 2 cents.

Today, my mom and I took all 4 kids to the geneticist. Long story short, it's looking like Carson has something called Saethre-Chotzen syndrome. She had a few key factor which the doctor was looking for. We will wait to see the final results before we have the other kids tested.

On to other funny (or not) topics.

After we got home from CHW, Keegan was laying in my bed and frantically came out screaming.
MY 5 YR OLD SWALLOWED 2 PENNIES!!!

Eff $700 billion, I am worried about 2 cents!!
I quickly called the the doctor and she told me if we don't see 2 pennies in 48 hours that we should think about a SURGEON!!!!

Then as my mom and I were laughing (actually crying) my mom looks outside and there is my GOOD shark vacuum sitting in the grass, by the way....it's raining!!!

I now KNOW, I have lost control of myself, my kids, and this house.......(please don't call social services!!)

9.25.2008

Things not getting any better

JUst a little update on Carson and Cooper.

Cooper had his test yesterday to see if he also has the bladder reflux. Good news....He doesn't. Bad news.....His pee pee hurts A LOT, and he has a fever......

Carson my dear has been the devil child lately. I can't help wondering if they slipped her somthing while she was under. LOL. Seriously....she hasn't been the same since she went into surgery. She is irritable, aggressive, not eating well, head banging the back of her head....so I talked to the NS and she will be having a MRI next Thursday. Yes, they will have to put her under, but we NEED to find out what is going on in her little head.

Will this saga ever end?

I attended a chat group last night with a plastic surgeon. He was alot of help and was a wealth of information. He actually showed interest in Carson's deal with high ICP, chiari and cranio. just from chit chat, he thought Carson may have a syndromic craniosynostosis. Which is not the best situation..... I have contacted him for more thoughts on treatment for Cars.

He did some training with our team and knows them well.

Here's hoping for some answers.

Monday, My mom and I are taking all 4 kids to a geneticist.
Hopefully we will get more answers there too.

9.20.2008

Our walk for CHW!


First of all, THANK you from the bottom of our hearts to all of you that donated!!

We had a GREAT TIME!!!

We raised a total of $1375.00. YAHOO!!!

Here are a few pictures-



2008 Team - Cole's cranio and chiari clan


My childhood girlfriends - our swim team relay


Us and about 20,000 other people


My friend Tracy, and her daughter Ashley, who also has craniosynostosis

2008 Children's CHAMPS

And a little face painting on the side!

9.18.2008

Re do of the hair do



Short and Sassy

Last night Riley and I went to get our hair cut. Our girl that we normally see called in sick, so we opted to see someone else........look at this new SASSY CHICA!!! She LOVES it. We went out last night and bought a few different products to try. She could not wait to go to school this morning to go show off her new look! (I will try to get a brighter picture when she gets home)

9.13.2008

Oh the places we'll go

Quarry Quest
2008
Cooper driving the crane

Diggin' for gems


The 3 amigos

(Carson spent the morning with nana. No need for sand in the stiches)


Dump truck rides!






Coop driving the "digger"


Keegan driving the crane

*****************************************

Lake pictures


Just hanging out in the grass all by myself


Here she comes - Pucker up puppy!

Do


Not


Follow

ME!

Here I come again!


Bump - before surgery

very little bump after surgery.