tag:blogger.com,1999:blog-3342840686995284960.post2805181519174854406..comments2023-11-05T04:32:59.035-08:00Comments on Sanity: H E double hockey sticksCole Twinshttp://www.blogger.com/profile/07690465674351682129noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-3342840686995284960.post-51572671124727105192009-02-18T06:20:00.000-08:002009-02-18T06:20:00.000-08:00Hello, my name is Susan Breidling and I work at th...Hello, my name is Susan Breidling and I work at the headquarters for Shriners Hospitals for Children. Your blog popped up on an Outlook Alert because you used the term "Shriners Hospitals." I read your blog and wanted to let you know that there is currently a physician at the Chicago hospital that is working on a study for craniosynostosis. If you would like more information, please give me a call at 813-281-7153.<BR/><BR/>Best wishes to you and your family.<BR/><BR/>Susan BreidlingSusanhttps://www.blogger.com/profile/10008475804655375791noreply@blogger.comtag:blogger.com,1999:blog-3342840686995284960.post-69118825838804756552009-02-18T05:51:00.000-08:002009-02-18T05:51:00.000-08:00Hang in there, friend. We may be too quiet around...Hang in there, friend. We may be too quiet around here sometimes, but everyone is here and surely listening. I'll cross my fingers for your new appointment. Give it a shot, and if he can't help, go wherever you need to go. It's not crazy to seek help for your kids, even if you have to travel half way around the world. ((hugs))Lost A Sockhttps://www.blogger.com/profile/10193285510550787651noreply@blogger.comtag:blogger.com,1999:blog-3342840686995284960.post-87454147417004338022009-02-17T13:45:00.000-08:002009-02-17T13:45:00.000-08:00You know, the thing about autism is - there is no ...You know, the thing about autism is - there is no "AUTISM" <BR/><BR/>it's just traits that some people have. And they don't have all of them. It's an umbrella diagnosis. So, even if they think she does have some level or type of autism ... well, that alone doesn't help.<BR/><BR/>I hope the neuro can help - having those videos to show him is a great idea!Michellehttps://www.blogger.com/profile/04082807589185886275noreply@blogger.comtag:blogger.com,1999:blog-3342840686995284960.post-68683050194710788602009-02-17T11:45:00.000-08:002009-02-17T11:45:00.000-08:00Cindy, I check your blog daily and have never comm...Cindy, <BR/>I check your blog daily and have never commented before. I keep tabs on your family because you and how you actually do keep it all together is an inspiration to every other mother. It is easy for the rest of us to see how God is in charge at your house. I'm glad you finally let some of this frustration out! I was beginning to think that you were the only one i knew that never had a breakdown! Even though I don't know you I'm always thinking about your fam!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3342840686995284960.post-53543095815275331952009-02-17T08:49:00.000-08:002009-02-17T08:49:00.000-08:00Oh Cindy,I didn't know you were going though other...Oh Cindy,<BR/>I didn't know you were going though other things with Carson. You are a fantastic mom and should never feel like you have failed them!! You have a plate that is overflowing and with a lack of sleep that has to be even harder. Also, you have been a great cranio sponsor to me- meeting with you a few weeks ago meant so much to me. I know you are busy, but you took the time for me. Thank you! I would take some benedryl tonight, sleep good, schedule that apt in Iowa since it will continue to be on your mind (more opinions NEVER hurt!), and go get a massage:) It sounds like you are going on vacation very soon, have a wonderful time!! <BR/>Hugs!<BR/>Jodi@JodiDanenRDhttps://www.blogger.com/profile/05033822394679850394noreply@blogger.comtag:blogger.com,1999:blog-3342840686995284960.post-29210347316675770432009-02-17T08:21:00.000-08:002009-02-17T08:21:00.000-08:00Hi Cindy,I check up on your blog everyday, everyti...Hi Cindy,<BR/>I check up on your blog everyday, everytime I read a post I think of how remarkable you are as a mom, a wife, and a friend. I always think to myself how much strength you have.<BR/>I wish I could help in some way, you are all always in my prayers.Alihttps://www.blogger.com/profile/00033702553112989065noreply@blogger.comtag:blogger.com,1999:blog-3342840686995284960.post-78813068885562001302009-02-17T07:49:00.000-08:002009-02-17T07:49:00.000-08:00(((((CINDY)))))I'm sorry you are feeling so down. ...(((((CINDY)))))<BR/>I'm sorry you are feeling so down. I know when I feel like this(we ALL do!)...there is not much that can be said to make me feel better. SO I won't say the "typical cheer you up crap"!!! I will say that I'm here for you, and I will be calling to harass you!! I have never been to Iowa, that I remember...but would gladly push my issues into a corner and come with you. Anytime. Seriously.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3342840686995284960.post-29887392578496772009-02-17T06:05:00.000-08:002009-02-17T06:05:00.000-08:00I'm so sorry Cindy! (((HUGS))) Regarding her rock...I'm so sorry Cindy! (((HUGS))) Regarding her rocking, why dont you video tape her doing it and post it for us to see. Many of us have experience with Autism Spectrum Disorders and it would help to see exactly what she's doing.Queen of the Househttps://www.blogger.com/profile/00453358102605274248noreply@blogger.comtag:blogger.com,1999:blog-3342840686995284960.post-40336051782927115072009-02-17T05:21:00.000-08:002009-02-17T05:21:00.000-08:00Hi my friend!!!I read your blog daily :)I only hav...Hi my friend!!!<BR/><BR/>I read your blog daily :)<BR/><BR/>I only have 1 bit of advice....and it's because the past year I've had horrible trouble sleeping because I can't "shut my brain off" to get any sleep!! Well my brother introduced me to this stuff called CALMS FORTE. it's a homeopathic sleep/anxiety pill!! it doesn't have a sleep aid actually in it, but what it does is "shut your brain off" so you can sleep!!! I've been takign it and things are better....i fall asleep faster and stay asleep!! you can get it at walgreens now! and it's not habit forming like sleeping pills, and it doens't knock you out like sleeping pills, so if you're needed in the night from kids you will still beable to hear them and wake up!!! seriously, try it!!!<BR/><BR/>2nd my brother is going to school for acupuncture starting in the fall......his focus is going to be helping kids get off of meds, primarily his students that are on the autism spectrum.....let me talk to him about C and the rocking! his best friend has been in practice quite awhile now and he can talk to him......acupuncture and chinese medicine are amazing things!!!!!!!! maybe you need to try that route if you aren't getting answers from drs here!?!?!?!<BR/><BR/>love you!!!!!!!!!!!!!!!!!!!!!!<BR/>JoyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3342840686995284960.post-55379464644373584762009-02-17T04:28:00.000-08:002009-02-17T04:28:00.000-08:00I'm still out here in Blog Land - and check you da...I'm still out here in Blog Land - and check you daily. Life can be very overwhelming ... and you know from your kids that when you don't get enough sleep it is even worse! You've got really big decsions and I don't see how you couldn't constantly be questioning yourself -- I know I would. Just keep praying for guidance -- and listen to that little voice -- it's probably God talking!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3342840686995284960.post-33741297506244645392009-02-17T02:33:00.000-08:002009-02-17T02:33:00.000-08:00Cindy,You do a remarkable job, and I can tell you ...Cindy,<BR/>You do a remarkable job, and I can tell you conclusively that you have in now way failed Carson, or the other children! I hope when/if I am blessed with children I can be half as much of a brilliant advocate for them as you are!<BR/><BR/>And, if your instinct is telling you to go to check out the NS in Iowa, do it! They are your children, and you know what's best, and anyone who belives otherwise can go to h-e-double hockey sticks. <BR/><BR/>And, even though I may not comment as much, (Blogger doesn't like my computer so much), I check your blog, and pray for you all daily!<BR/><BR/>All the best wishes in the world are flying across the atlantic from me!<BR/>KathKathhttps://www.blogger.com/profile/08199575653192221296noreply@blogger.comtag:blogger.com,1999:blog-3342840686995284960.post-65436034851875053122009-02-16T23:47:00.000-08:002009-02-16T23:47:00.000-08:00I have read you post today and #1-I wish we were c...I have read you post today and #1-I wish we were closer so we could actually meet and #2-I wish we were closer so I could give you a great big hug!!!! Keep your chin up no matter how hard things may get! Julie in Seattle :)Anonymousnoreply@blogger.com